Muscular dystrophy patients in Wales ‘receiving inadequate care’

Patients suffering from muscular dystrophy in Wales are being let down by the treatment they receive on the NHS.

This is a claim made by the Muscular Dystrophy Campaign, which stated that a lack of regional care advisers in Wales is an obstacle for those who would benefit from information on adapting their homes, care, treatment and the grants available to them.

Scotland, England and Northern Ireland all have this support network, it highlighted, and people in Wales often have to travel to these locations to receive the best advice possible.

A representative for the assembly government said: “The health minister Edwina Hart is well aware of the difficult issues around health services for people with neuromuscular conditions.”

They added that the government is currently taking action to improve this situation and has been working alongside the Muscular Dystrophy Campaign to achieve this goal.

Earlier this month, the NHS announced that it will overhaul the way in which patients lodge a complaint with the health service in Wales.